Sunday, July 13, 2014
The past few years have taught me much as I've faced the harsh and bitter realities of the world. Over the past 6 years, some of the things major sorrows I have dealt with include:
-the loss of my choir teacher/mentor/very dear friend to cancer
-the death of my grandparents
-the grisly murder of a close friend, whose murder details and murderer's trial was aired on TV (Travis Alexander, murdered by Jodi Arias)
-witnessing/dealing with the stillbirth of my nephew
-coming to terms with my mom's diagnosis, and watching her slowly deteriorate day by day
A couple things I've learned are:
1. When you think you have it bad, someone has it worse.
2. Right when you think it can't get any worse, it can.
This past week my 3 year old son had a tonsillectomy. I was thinking back to when I was 6 years old and I had my tonsils removed. I can still see my mom's tear-streaked face as I woke up from the anesthesia; I was frantic and ripping out my IV. Watching two of my babies now go through this, I can only imagine how my mom felt!
That night, as my son lay on the couch and finally fell asleep after a painful day, I logged onto facebook and a friend messaged me.
"Did you hear about the Stay family?" she wrote.
"No...what's going on??" I replied.
"I'll call you," my friend wrote.
Katie Stay was one of my closest, dearest friends. She was the first real friend I made after I married my husband and moved to Moreno Valley. She threw my baby showers, we had family dinners together often, we walked everyday to the school together to pick our girls up, we had craft days and play dates with our kids and talked on the phone everyday. We hosted parties together and were there for all of the important milestones for one another in our lives and our children's lives
(including the adoption of our niece). Each year, we celebrated our birthdays together by going out to lunch (her birthday is October 6th and mine is the 7th). Indeed, we became the very best of friends. We talked about everything together...our joys, our struggles, our hardships with family relationships, etc. She moved to Texas a few years ago and we've still remained close- talking on the phone, emailing and even mailing cards and gifts to each other.
In the few moments that I waited for my friend to call me and update me on what was going on with the Stay family, I clicked on Katie's facebook page. My jaw dropped and I let out a cry as I read comments from friends saying "RIP Katie and family." Confusion, denial, anger, sorrow, anxiety...those are just a few of the emotions that flooded over me as I learned about the horrific murder of my dear friend and her family. I'm not going to post the details here (google it if you haven't heard, or watch the news). Suffice it to say, I have been a mess the past few days. That night, I didn't sleep a wink. My thoughts kept turning to my friend and her husband, to her 4 children who were killed, to her 1 daughter who survived. My heart was breaking, my head felt as if it were going to explode and the tears would not stop flowing.
Over the next few days, I laid low at home, in my pajamas, trying to care for my recovering child while mourning the great loss of our dear family friends. I couldn't imagine what Cassidy (the sole surviving daughter) was going through. After spending a couple days in the hospital, Cassidy was released and went to a balloon launch/memorial for her family at their nearby elementary school yesterday. I imagined this poor girl would be a mess, but when I saw her on the news, she had a brave smile on her face and declared that she knew her family is now in a better place. She encouraged and inspired others to "Stay Strong" during this tragedy and to find the light in the darkness. I am truly amazed and inspired by this girl's inner strength. I knew she had it in her (she is her mother's daughter, afterall, and Katie was one of the most positive and optimistic people I've known) but didn't expect it so early on. I know she definitely has a lot of healing and struggles to overcome in the future, but I think she will continue to amaze us all with her example of strength, faith and hope.
I know this post isn't really related to my mom or dementia. Maybe it's mostly for me (writing is my therapy). But if there's one message that you take away from this, let it be one of hope and courage. Life is hard. I know that well by now. But rather than dwelling on those things that can drown us in sorrow, let us rise above these trials and give hope and inspiration to others around us. That is exactly the example that Katie led in her life; her legacy lives on in her daughter. My life is better for having had her in it, and though I will miss everyday, I cherish the memories she left me with and the example of goodness that she set. I have a new resolve to "Stay Strong" in the trials I face, the sorrows I encounter. I have hope and I have faith that this life is not the end; rather, death is the beginning of something better to come.
'Til we meet again, my dear friends.
Wednesday, July 2, 2014
Lately I've been really touched by his love and devotion to my mom. There are certainly days where he feels absolutely frustrated with her, and I'm not going to say he doesn't ever lose his patience. Live a day in his shoes and patience will bring on a whole new meaning! But I can see and feel, in all of the little things that he does and says, just how much he loves my mom. Some of these things are a little personal to share, but here are a couple of examples to demonstrate his true love for my mom.
He takes her to Bath & Body Works. If you are a regular reader, you know what a chore this is. Furthermore, mom has lost her concept of money so an average trip to Bath & Body Works will cost my dad at least $100. She likes to do this at least every other month. I once asked him why he keeps taking her, arguing that he's wasting too much money at that place. His reply?
"It's just money. If that's what makes her happy then I'll take her. I figure there isn't much left that she enjoys, so whatever makes her happy."
It's the same answer when he gives in to taking her to Sam's Club or to Kohl's or anywhere. He doesn't have to do it. She doesn't need (or even use) most of what she buys. It would be much easier to go by himself or put her off. And as much as he wants to, he always gives in and takes her. Why? It is a true act of love that drives him to do it.
Right now, my parents are on [what will likely be] their final vacation to Utah. I warned my dad against going alone and taking her to Utah; she's very difficult to take out anymore. On their trip last year, mom wanted to visit the relatives she remembered and after 10 minutes of visiting with each of them, she was ready to retire to her trailer. Why go through all of that hassle, spend the money and the time to drive 12 hours, out of state hauling their fifth wheel camper? The answer to me is clear. LOVE. My dad truly loves my mom. He isn't taking this trip for himself (I know he'd love more than anything to take a day of fishing for himself), he is doing this purely for her. We don't know what tomorrow brings...everyday she forgets more and more and pieces of her life and the people she once knew. But for today, she wants to take her trip to Utah. And so my dad does what he can to make my mom happy. He doesn't think he's doing anything extraordinary, but I am touched and inspired by his example of love and devotion to my mom. She is truly blessed to have him as her companion.
Tuesday, July 1, 2014
A couple of months ago, I wrote about the autoimmune disease that I've been dealing with for the past year. I've really become proactive in my health and in healing my body and eliminating the debilitating symptoms that the medication is not helping. I've also written before about my fears of developing demetia. It's a fate that I do not ever want to inherit. As I have been reading and researching (and I've been doing a lot of this), I'm learning more and more that there could very well be a connection between our diet/lifestyle and dementia.
I've suggested some of these ideas to some of my family members; most are either in denial or think I'm a little crazy (although they haven't read these books themselves). I recently read this book, called "Grain Brain". It may sound silly, but it almost brought me to tears as I read it, thinking about my mom all the while. If I had only known 7 or 10 years ago what I know today, maybe we could have prevented all of this from happening or at the very least, slowed it down. There is way too much information that I've studied to relay in one simple post, but if dementia is in your family I HIGHLY recommend you read this book. And even if it's not...I highly recommend you read this book! So many of my health issues (including my brain fog and migraines) have gone away after changing my diet and lifestyle. [You can read more about symptoms and whatnot in my new health blog]. It's true that genetics can play a factor in dementia and Alzheimer's, but it doesn't have to be your fate! Break the cycle!! After all of my research, I really do believe there are things you can do to prevent this awful disease from happening.
Nobody knows yet what causes semantic dementia. What they do know is that a protein in the body "gets loose" and deposits on the brain, eating it away. But how it gets loose is the mystery. What I have learned is that food plays a huge role in your body and affects the proteins in your body; foods such as carbs, wheats and sugars in particular. Of course everyone's bodies are different; some people are more predisposed to certain illnesses, but all of these foods can affect your brain and neurological system. I've often wondered why there is such a dramatic increase in all of the different health epidemics we see today: obesity, diabetes, heart disease, dementia....what is the common link? I'll tell you what it is. Food. The foods we eat today are so processed and chemically altered and filled with harmful toxins; it's no wonder we are seeing all of these epidemics! Even foods such as wheat, which are considered healthy, have been so genetically engineered and processed that it doesn't even resemble the wheat that our ancestors ate. I know from personal experience that by changing my diet, I have eliminated a lot of the health problems I've been dealing with. I just wish that it wasn't too late for my mom. I will forever wonder what could have been.
Before you criticize this post, I encourage you to do the research yourself. Start with this book. There are many other great books that I have read, but this one spoke to me the most in regards to dementia (it was written by a neurologist, who also happens to be a nutritionist...he has included stories of his own practice and how he has helped people with specific neurological issues they've faced, all by managing diet). I know this post may get mixed reviews. Change is hard. But I feel an obligation to my readers, especially those who worry about their fate to dementia, to share everything I've learned throughout this journey.
Wednesday, June 25, 2014
"Oh, Jones, Jeffrey? Is this Jones Jeffrey...Cassandra?"
She's become especially frustrated with answering machines. She doesn't understand the purpose of an answering device and thinks that it is an actual person talking to her. She talks back into the phone and becomes agitated when nobody will respond to her.
A couple of weeks ago, I took mom to her hair appointment. I told her I would be there between 2:30-2:40 to pick her up (that was a mistake...she doesn't know what "between times" means). I left my house at 2:30 and found her waiting, peering out her living room window as she watched for my arrival.
When I returned home later that afternoon, I found two messages on my machine from mom. This was one of them.
Interpretation: "buhuhubuhuhu (mumbling)...Jeff Jones house too? I'm trying to call Cassandra? No, you're not talking to tell me too no? Uh, darn it."
there was one more message, similar to this in which she gets frustrated that the person on the other end won't give me the phone. Poor thing thinks she is being ignored!
Thursday, June 19, 2014
A few weeks ago, mom got a touch of spring fever. She did some laundry (only hers), washed some dishes and even started the dishwasher. You can see why dad was not so thrilled about mom’s cleaning spree.
Just an fyi: dish soap does NOT belong in the dishwasher. I’m not sure how long it took dad to get rid of the suds…but I’m fairly certain he’s assured mom that he’d be happy to take care of the dishwasher and washing machine from here on out!
Friday, June 13, 2014
It’s that time of year again! The time that I begin my fundraising for The Walk to End Alzheimer’s. Actually, I’m behind on getting started with this. Time to get on the ball!
As many of you know, my family has formed “Team Dee” and we walk every year for the Alzheimer’s Association in honor of my mom. We have a lot of fun doing it and it’s a way that we all rally together in support of mom and each other. We always make it fun by having a little friendly competition. My dad, Aunt and myself always compete to see who can raise the most money. As of right now, my Aunt is kicking all of our butts ;) It’s always a close finish but somehow I still end up on the bottom of the three of us. I have, however, been a successful champion each year (meaning I’ve raised over $500). Our team has been on the top family fundraising list and we DID win an award last year for the Best Dressed team…we will defend our title again this year!
On a more serious note, this Organization is a blessing to many lives. For the families affected by Alzheimer’s and dementia, the Alzheimer’s Association provides resources, research, support groups, respite care, etc at no cost to the family. With the overwhelming costs already associated with this disease, this lightens the burden at least a little. They wouldn’t be able to provide so much without the generous donations of others. It is a very worthy cause and organization to contribute to. If you feel inclined to make a donation, please visit my personal page and donate to me. If you like my dad or another team member better, you can donate to either of them and I’ll try not to get my feelings hurt ;) BUT…if you do donate, please make sure it is on one of our personal pages rather than on the team page; if it’s on the team page no individual gets credit for it and we’re all working for our t-shirts and medals!
We are always welcoming anyone who wants to join our team, you don’t have to be family to walk with us!! If you are uncomfortable with fundraising, you don’t even have to do fundraising (although this is the primary purpose of the walk). My point is, if you want to join in support, it’s very low key and we’d love to have you on our team! We would especially love more family to join with us…we have lots from dad’s family joining us, ironically nobody yet from mom’s…hint hint ;) Sign up today!!
If you’d like to donate to this cause, please visit my page by clicking here!
Last night, my girls spent the night at my mom’s house. Dad had an out-of-town job this week, so we’ve been taking care of her while he’s gone.
When I went to pick them up this morning, I found this note attached to the door (left for the church ladies who come to “babysit” her"…she leaves notes like these on the door every week).
At first glance, I thought she had glued it on the door. Upon further inspection (and a little sniffing), I discovered the glue-like substance to not be glue at all. She had, in fact, used her “Moonlight Path” lotion to attach the note. You’ve got to give her some points for creativity on this one. It’s no wonder why she has to stock pile on the lotion...it serves many purposes!!