Thursday, September 11, 2014
While We Were Out
On Monday, I went over for my morning with mom. I heard the blow dryer going, as always. I was a little wary of the noise given my Aunt's experience the week before. Sure enough, when I walked in mom's room, the blow dryer was sitting on the stool by itself, emitting intense heat against mom's pant leg as she stood over her mirror, applying gobs of make-up on her face. I walked over and without any warning to mom, unplugged the blow dryer and hid it away. While I searched for a hiding place, mom told me I should "support" her and shouldn't be taking her blow dryer away; she was completely oblivious to my hiding place next to dad's side of the bed. For the rest of the morning, mom was upset with me and mumbled comments such as,
"You need to give me back my blow dryer...you should support me...I never did this to my mom..."
It was hard and a part of me wanted to make her happy and give her back her blow dryer, but I knew I couldn't give in to her temper tantrums. I wouldn't give my toddler a knife just because he threw a fit that he wanted it; it's the same scenario with my mom. The blow dryer has become a hazard.
Fast forward to the next couple of days. My Aunt and Uncle have been over taking care of mom and have noticed that the shower stall is completely dry. It seems that without a blow dryer, mom's routine is off and she believes she can't shower. I brought this up with my dad and he came up with an idea to disable the wire that gives heat to the blow dryer. He figured most of the risk would be gone with the heat. He asked if I'd check up on her this morning and make sure that she showers.
I showed up to mom's at 9:00 this morning, right as she was about to start getting ready. She complained of me being in her room, concerned of my seeing her "naked" and a "plain Jane". It seemed as though she planned to shower, so I left the room to give her some privacy. After about 20 minutes, I decided to check in on her since I hadn't heard the shower going. I found mom halfway dressed with her head in the sink. Upon further inspection, I found that the shower stall had only a few drops of water directly under the faucet while the rest was dry. It didn't take long to figure out what mom means when she says it's a "severe shower day". I am guessing that "severe shower days" means she gets her whole body into the shower to wash off; the rest of the days it seems she must be washing her hair in the sink and perhaps rinsing her lower half in the shower. I don't know exactly how long this has been going on, but I think the dry shower stall mystery is solved :(
At our previous trips to UCLA, they always liked to point out mom's strength. At the top of the list was her hygiene and the fact that she was still able to take care of herself. Now that this is slipping, I wonder what is left.
Tuesday, September 9, 2014
The Past Few Weeks
We took a trip down memory lane and toured the campus (which has changed a lot) and I shared stories with Maurina about my glory days. I reminisced about Mother's Week-a week in which all the mothers came to visit their kids at college, went to class with them and attended various activities put on by the clubs and programs. I have such fond memories of the 2 years that my mom came up to visit me for Mother's Week. It was bittersweet thinking about them.
Before we left, I tried and tried to get my mom to understand that Maurina was leaving for college. I wanted to spark her memory of those happy days when she took me off to school, explaining to her that Maurina is going away to the same college I went to, but any memory mom may have is now hidden in a deep place. She understood my explanation of college about as well as I can understand calculus-which is not very well. Before we left, Maurina tried to give grandma a hug and tell her she was going, but mom hardly acknowledged her and stood still while being hugged. Later, Maurina resigned to the fact that "grandma probably won't remember me by the time I come to visit at Christmas."
Though the trip was a little bittersweet, it was mostly sweet. Even though mom couldn't join us, I will forever have those memories to hold onto and cherish. I do have to say, I am very grateful for the people who helped out while we were gone on this trip. I really enjoyed the father-daughter time with dad. We always have good conversations and fun while we're out...even though people frequently mistook him for my husband rather than my father. Ha ha. This trip wouldn't have been possible without my sister and her husband, who spent their nights over with mom, and for my Aunt and church friends who made sure to be there to care for mom while we were out. It's important for caregivers to get a break, and dad sure needed it!
Throughout our 16 hour drive there and back, we had a lot of time to talk. We talked a lot about mom and about the future with mom. We have some really hard decisions to make; or rather, my dad does. Much has transpired over the past few months and mom is really to the point where she needs more care than we are currently providing. Yet, we aren't ready to think about a "home" for her. I honestly don't know if my dad will ever get to that point. But it's evident that we need to do something more than what we are doing, both to keep her safe as well as to keep her out of trouble. So...back to the drawing board. I suppose it's time to look into hired help.
Here are a couple of pictures of the trip we made when my parents took me to college. The second one was taken during Mother's Week. And I don't know why I look so wide in the picture; I think it's the dress ;)

Tuesday, August 19, 2014
Mom’s New A-Line
Last week, a facebook friend posted a picture of her daughter with a caption lamenting the fact that she had taken a pair of scissors to her beautiful, long brown locks…and the day before school starts! Her little girl had taken out a good chunk of hair right up to her jaw line. Mom was upset and by the looks of the picture, her daughter was upset as well; no doubt she got a good reprimand!
I’m sure many people viewing that picture either flinched in horror or chuckled with memories of their own curious, young children. I’ve had a couple of close calls myself with my own kids. But when I saw that picture, it wasn’t my kids I was chuckling about. I almost typed out my comment but then thought about how strange that must sound to all of those reading who don’t know me. Can you imagine a comment reading,
“I had the same problem with my mom this week!!”
Well…let me tell you…it’s high time my dad hid the scissors from my mom! Last Monday (a week ago) I went for my usual day with mom. I peeked in her room and saw that she was still primping in front of the mirror. I closed to door quietly to give her some privacy; she hates me seeing her as a “Plain Jane”. Back in the living room, I heard the blow dryer go on and I knew right away that she was likely burning more holes in her shirt.
[Mom gets very sweaty, but she doesn’t understand why she is so “wet”; her solution is to use a hot blow dryer to dry herself off. Consequently, she is burning a lot of holes in her clothing].
I quickly ran back to her room to unplug the blow dryer, much to mom’s dismay. As I turned around, I caught glimpse of mom’s toilet…and a huge clump of red hair floating on the water; it was a good amount of hair. My eyes widened in horror as I turned to mom.
“Mom, you cut your hair!” I exclaimed.
In a bit of shock, I ran my fingers through the back of her hair, noticing the huge chunk that had been cut out above her neckline. Annoyed that I was touching her hair, mom mumbled,
“It’s so hot too, I cut this here,” she motioned to the back of her hair and towards the toilet, where she had discarded inches of her hair.
Mom’s new A-line:
She doesn’t quite understand why it’s not curling so well back there. I wonder…
My Uncle texted me this morning to relate that my Aunt had found yet another clump of hair in her bathroom toilet upon their arrival. I think we know what needs to be done…hide the scissors!!
Thursday, August 14, 2014
Don’t Forget Me, Grandma
It’s been kind of hard for me to write lately. Not just because I was finishing up summer break with the kids, but because I’m kind of at a loss sometimes of what to write. Lately, every time I see mom, it seems as though she’s slipping farther and farther away. Her hair and make up continues to get worse and worse (I didn’t think that was possible) and her speech is more and more slurred together. Since she talks about the same 5 subjects over and over, I can usually make sense of what she’s talking about; but for the average Joe listening to her it’s hard to understand what she’s saying.
Last weekend, the kids and I went over to mom’s house. My daughter (9 years old) had gone back into grandma’s computer room to say hi. She came back to me in the living room, a few minutes later, with a somber look on her face. She looked up at me and from behind her purple, wire rimmed glasses I saw a small sadness in her eyes. With her lips slightly turned down, she looked up at me and quietly said,
“Mommy, grandma doesn’t remember me. She thought I was Marty.”
[Marty is a lady from church that we’ve known for almost 30 years…I don’t know if that’s who she was thinking of, since church ladies come over every week to help, or if she just mixed up names.]
“Did you tell her who you were?” I asked, my heart aching for my little girl that her grandma didn’t recognize her.
“Yes, I told her I was Aubrey and then she said ‘you’re Cassandra’s daughter,” Aubrey replied.
I hugged Aubrey tightly and tried to reassure her,
“See, she remembers you. She just got confused for a minute.”
Mom does get confused and after some explanation, she will sometimes remember who people are (particularly our more immediate family). But I think the days are numbered. She seems to un-recognize familiar faces more and more often; now with her own grandkids! In a couple of weeks, I will be taking my niece-daughter away to college in another state. She’s already expressed her concerns that grandma probably won’t remember her by the time she next comes back to visit. :(
Sunday, July 13, 2014
Stay Strong
The past few years have taught me much as I've faced the harsh and bitter realities of the world. Over the past 6 years, some of the things major sorrows I have dealt with include:
-the loss of my choir teacher/mentor/very dear friend to cancer
-the death of my grandparents
-the grisly murder of a close friend, whose murder details and murderer's trial was aired on TV (Travis Alexander, murdered by Jodi Arias)
-witnessing/dealing with the stillbirth of my nephew
-coming to terms with my mom's diagnosis, and watching her slowly deteriorate day by day
A couple things I've learned are:
1. When you think you have it bad, someone has it worse.
2. Right when you think it can't get any worse, it can.
This past week my 3 year old son had a tonsillectomy. I was thinking back to when I was 6 years old and I had my tonsils removed. I can still see my mom's tear-streaked face as I woke up from the anesthesia; I was frantic and ripping out my IV. Watching two of my babies now go through this, I can only imagine how my mom felt!
That night, as my son lay on the couch and finally fell asleep after a painful day, I logged onto facebook and a friend messaged me.
"Did you hear about the Stay family?" she wrote.
"No...what's going on??" I replied.
"I'll call you," my friend wrote.
Katie Stay was one of my closest, dearest friends. She was the first real friend I made after I married my husband and moved to Moreno Valley. She threw my baby showers, we had family dinners together often, we walked everyday to the school together to pick our girls up, we had craft days and play dates with our kids and talked on the phone everyday. We hosted parties together and were there for all of the important milestones for one another in our lives and our children's lives
(including the adoption of our niece). Each year, we celebrated our birthdays together by going out to lunch (her birthday is October 6th and mine is the 7th). Indeed, we became the very best of friends. We talked about everything together...our joys, our struggles, our hardships with family relationships, etc. She moved to Texas a few years ago and we've still remained close- talking on the phone, emailing and even mailing cards and gifts to each other.
In the few moments that I waited for my friend to call me and update me on what was going on with the Stay family, I clicked on Katie's facebook page. My jaw dropped and I let out a cry as I read comments from friends saying "RIP Katie and family." Confusion, denial, anger, sorrow, anxiety...those are just a few of the emotions that flooded over me as I learned about the horrific murder of my dear friend and her family. I'm not going to post the details here (google it if you haven't heard, or watch the news). Suffice it to say, I have been a mess the past few days. That night, I didn't sleep a wink. My thoughts kept turning to my friend and her husband, to her 4 children who were killed, to her 1 daughter who survived. My heart was breaking, my head felt as if it were going to explode and the tears would not stop flowing.
Over the next few days, I laid low at home, in my pajamas, trying to care for my recovering child while mourning the great loss of our dear family friends. I couldn't imagine what Cassidy (the sole surviving daughter) was going through. After spending a couple days in the hospital, Cassidy was released and went to a balloon launch/memorial for her family at their nearby elementary school yesterday. I imagined this poor girl would be a mess, but when I saw her on the news, she had a brave smile on her face and declared that she knew her family is now in a better place. She encouraged and inspired others to "Stay Strong" during this tragedy and to find the light in the darkness. I am truly amazed and inspired by this girl's inner strength. I knew she had it in her (she is her mother's daughter, afterall, and Katie was one of the most positive and optimistic people I've known) but didn't expect it so early on. I know she definitely has a lot of healing and struggles to overcome in the future, but I think she will continue to amaze us all with her example of strength, faith and hope.
I know this post isn't really related to my mom or dementia. Maybe it's mostly for me (writing is my therapy). But if there's one message that you take away from this, let it be one of hope and courage. Life is hard. I know that well by now. But rather than dwelling on those things that can drown us in sorrow, let us rise above these trials and give hope and inspiration to others around us. That is exactly the example that Katie led in her life; her legacy lives on in her daughter. My life is better for having had her in it, and though I will miss everyday, I cherish the memories she left me with and the example of goodness that she set. I have a new resolve to "Stay Strong" in the trials I face, the sorrows I encounter. I have hope and I have faith that this life is not the end; rather, death is the beginning of something better to come.
'Til we meet again, my dear friends.
Wednesday, July 2, 2014
Lessons of Love
Lately I've been really touched by his love and devotion to my mom. There are certainly days where he feels absolutely frustrated with her, and I'm not going to say he doesn't ever lose his patience. Live a day in his shoes and patience will bring on a whole new meaning! But I can see and feel, in all of the little things that he does and says, just how much he loves my mom. Some of these things are a little personal to share, but here are a couple of examples to demonstrate his true love for my mom.
He takes her to Bath & Body Works. If you are a regular reader, you know what a chore this is. Furthermore, mom has lost her concept of money so an average trip to Bath & Body Works will cost my dad at least $100. She likes to do this at least every other month. I once asked him why he keeps taking her, arguing that he's wasting too much money at that place. His reply?
"It's just money. If that's what makes her happy then I'll take her. I figure there isn't much left that she enjoys, so whatever makes her happy."
It's the same answer when he gives in to taking her to Sam's Club or to Kohl's or anywhere. He doesn't have to do it. She doesn't need (or even use) most of what she buys. It would be much easier to go by himself or put her off. And as much as he wants to, he always gives in and takes her. Why? It is a true act of love that drives him to do it.
Right now, my parents are on [what will likely be] their final vacation to Utah. I warned my dad against going alone and taking her to Utah; she's very difficult to take out anymore. On their trip last year, mom wanted to visit the relatives she remembered and after 10 minutes of visiting with each of them, she was ready to retire to her trailer. Why go through all of that hassle, spend the money and the time to drive 12 hours, out of state hauling their fifth wheel camper? The answer to me is clear. LOVE. My dad truly loves my mom. He isn't taking this trip for himself (I know he'd love more than anything to take a day of fishing for himself), he is doing this purely for her. We don't know what tomorrow brings...everyday she forgets more and more and pieces of her life and the people she once knew. But for today, she wants to take her trip to Utah. And so my dad does what he can to make my mom happy. He doesn't think he's doing anything extraordinary, but I am touched and inspired by his example of love and devotion to my mom. She is truly blessed to have him as her companion.
Tuesday, July 1, 2014
I Wish I Knew Then What I Know Now
A couple of months ago, I wrote about the autoimmune disease that I've been dealing with for the past year. I've really become proactive in my health and in healing my body and eliminating the debilitating symptoms that the medication is not helping. I've also written before about my fears of developing demetia. It's a fate that I do not ever want to inherit. As I have been reading and researching (and I've been doing a lot of this), I'm learning more and more that there could very well be a connection between our diet/lifestyle and dementia.
I've suggested some of these ideas to some of my family members; most are either in denial or think I'm a little crazy (although they haven't read these books themselves). I recently read this book, called "Grain Brain". It may sound silly, but it almost brought me to tears as I read it, thinking about my mom all the while. If I had only known 7 or 10 years ago what I know today, maybe we could have prevented all of this from happening or at the very least, slowed it down. There is way too much information that I've studied to relay in one simple post, but if dementia is in your family I HIGHLY recommend you read this book. And even if it's not...I highly recommend you read this book! So many of my health issues (including my brain fog and migraines) have gone away after changing my diet and lifestyle. [You can read more about symptoms and whatnot in my new health blog]. It's true that genetics can play a factor in dementia and Alzheimer's, but it doesn't have to be your fate! Break the cycle!! After all of my research, I really do believe there are things you can do to prevent this awful disease from happening.
Nobody knows yet what causes semantic dementia. What they do know is that a protein in the body "gets loose" and deposits on the brain, eating it away. But how it gets loose is the mystery. What I have learned is that food plays a huge role in your body and affects the proteins in your body; foods such as carbs, wheats and sugars in particular. Of course everyone's bodies are different; some people are more predisposed to certain illnesses, but all of these foods can affect your brain and neurological system. I've often wondered why there is such a dramatic increase in all of the different health epidemics we see today: obesity, diabetes, heart disease, dementia....what is the common link? I'll tell you what it is. Food. The foods we eat today are so processed and chemically altered and filled with harmful toxins; it's no wonder we are seeing all of these epidemics! Even foods such as wheat, which are considered healthy, have been so genetically engineered and processed that it doesn't even resemble the wheat that our ancestors ate. I know from personal experience that by changing my diet, I have eliminated a lot of the health problems I've been dealing with. I just wish that it wasn't too late for my mom. I will forever wonder what could have been.
Before you criticize this post, I encourage you to do the research yourself. Start with this book. There are many other great books that I have read, but this one spoke to me the most in regards to dementia (it was written by a neurologist, who also happens to be a nutritionist...he has included stories of his own practice and how he has helped people with specific neurological issues they've faced, all by managing diet). I know this post may get mixed reviews. Change is hard. But I feel an obligation to my readers, especially those who worry about their fate to dementia, to share everything I've learned throughout this journey.






